Our founder, Wendy Angulo has joined the ALSO Us Program from Mitsubishi Tanabe Pharma America as one of its experts. The program is designed to help raise awareness of the challenges young people face when a family member is diagnosed with ALS (Amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease, is a progressive degeneration of nerve cells that control muscle movements). The majority of ALS patients die within two to five years of receiving a diagnosis.
Young adults and children who have a loved one with ALS may experience emotional challenges and may need support to cope with such an overwhelming disease. The ALSO Us Program encourages young people affected by the disease to use the power of written and visual art to express their experiences.
Back in April, after a nationwide call for submission, the first round of participants was selected and three of them were assigned to work with Ms. Angulo.
For the next few months, Mackenzie, Kieran, and Daniel will be partnering with Ms. Angulo to develop a biographical essay, a poem and a public speech to raise awareness of the impact of ALS on caregivers.
“Writing empowered my voice, allowing me to connect with others through my words; giving me the courage to speak up and tell my story. I am eager to work with the ALSO US Program as a Mentor and help these young adults to find their voices and share their stories”, said Wendy Angulo.
We look forward to seeing the final work of Mackenzie, Daniel, and Kieran!
For more information about the program, click here.